Emily
New Member
Posts: 1
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Post by Emily on Jan 23, 2014 14:05:42 GMT
If you're reading this, it means you've found yourself on the discussion board for the Neurofibromatosis Society of Nova Scotia!
This forum (and the society) have been created as a means of empowering and educating those whose lives are affected by NF. Please, take a moment to introduce yourself. If you'd like, please feel free to start discussions as you see fit.
All we ask is that everyone remain respectful - friendly support is what we're going for!
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Post by Emily on Mar 17, 2015 11:05:01 GMT
Hi!
My name is Emily McDonah, I'm living a stones throw away from Peggy's Cove, NS, I was diagnosed with Schwannomatosis about three years ago; and have been fighting to find effective treatment of my symptoms which include chronic, electric pain; tremor; anxiety and depression; and recovering from numerous surgeries.
I'm in a rural area with two young kids, two dogs, two cats and a home-based business. I would love to start a coversation where we can discuss symptoms, treatments, misery, and inspiration! I hope to hear from more of you!
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Post by Emily on Oct 7, 2015 18:38:12 GMT
Me checking in again. Since my last post I've been formally diagnosed with NF2. That was a surprise.
How long has it taken you all to be diagnosed? Was it an easy process?
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